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Read conversations, start a discussion, and connect with others about chronic kidney disease.

What do you wish that someone would have told you when you were first diagnosed with CKD?

I wish I had been told that I needed to watch what I eat and drink at the beginning of this journey. I wasn't told that taking care of this...

How did you feel after getting diagnosed with CKD?

A new diagnosis can be so overwhelming and it can bring up many emotions. Fear, frustration, surprise, and maybe even relief to get some answers. How did you feel after...

Newly diagnosed and terrified

Hello. I'm looking for some comfort because what I read on the internet about kidney disease is very bad. I had blood in the urine from the glomeruli of the...

Kidney disease

Feel like a open hot flame 🔥 inside my body feel like...

CKD 3rd stage

My last egfr was 54 (aug21, 2023) My latest egfr was 72 (jan9, 2024) How common is this to advance upward 18 measured points in a time-span of 4 months...

Never A Dull Moment - Always Something New

I am going to leave my body to science. There is no way that one person can have so much wrong with them. I got my first chronic illness back...

What caused my chronic kidney disease stage 3 was lithium use for many years. Why is that?

My dad is being diagnosed with stage 2 ckd

I’m grasping at straws because I’m honestly scared to death, my dad is my absolute rock and he has stage 2 ckd- found because of a routine blood test he...

CKD Stage 3

Just diagnosed via lab results. My Endo is referring me to a nephrologist. What exactly is Stage 3a?...

Alport Syndrome COL4A4

I was just diagnosed with Alport Syndrome COL4A4 through genetic testing from Natera. My new nephrologist felt I should consider this since my dad died of ESRD along with heart...

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