How Do I Connect With Other People in the Chronic Kidney Disease Community?
Many people with chronic kidney disease (CKD) have told us that it can be challenging to find other people in their community who truly understand their experiences. Our goal at Chronic-Kidney-Disease.net is to connect people with CKD and caregivers with one another and build an online community that helps bridge that gap.
How do I connect with others on Chronic-Kidney-Disease.net?
Our Community Hub is a great place to see what people are talking about in the CKD community. Here, we share trending topics and the latest updates, and we have a spot where you can connect with other members. It is our one-stop shop for all things CKD!
Most people also start by reading our articles about life with chronic kidney disease. Most of the articles in this community are written by someone living with CKD. Additionally, our Editorial Team brings the most current condition information and research updates to the community.
Stories, forums, and more
Articles are just the tip of the iceberg! Everyone who is affected by chronic kidney disease has their own unique story to tell. In our Stories section, anyone can share what their experience with CKD has been like, as well as read stories from other community members.
Forums are another way to dive deeper into a conversation around a specific topic. For example, this forum is a place to discuss your experience with dialysis, while this one focuses on what people in our community wished others knew about CKD.
You can also use forums to ask questions you may have about CKD or its treatments. Reaching out in a forum is a great way to get answers to any of your “Is this normal?” questions and hear directly from those who also have CKD.
Our contributor team at Chronic-Kidney-Disease.net writes so many relatable articles about life with CKD. If an article strikes a chord with you, feel free to comment and share your thoughts.
What if I want to communicate privately?
Some aspects of chronic kidney disease can be hard to openly discuss on the internet. You might worry about sharing too much on social media. What if people from your personal life see? But you still want to connect with others.
If you are concerned about privacy, you can choose a username that does not reveal any personal information. This is the best way to engage without revealing who you are.
Creating a username
Choose a username that does not use your first and last name or any nicknames that might easily identify you. Then register following these few simple steps:
- Click to register for Chronic-Kidney-Disease.net.
- Enter your username.
- Enter your email address. Your email will not be visible to other users on Chronic-Kidney-Disease.net. Your email will be used to log in to your account and receive your Chronic-Kidney-Disease.net weekly newsletter.
Using Chronic-Kidney-Disease.net privately
Once you log in using the email for your username, you will be able to participate on Chronic-Kidney-Disease.net without other community members identifying you. You can share as much or as little as you want about your experience with CKD.
You will want to make sure you do not post anything that includes personal information about your identity. Some examples might include:
- Your location (although generally mentioning your state or country is fine!)
- Full names of your family members or friends
- Your place of employment
- Detailed personal or medical information
Thank you for joining us
Thank you for being a member of Chronic-Kidney-Disease.net. We hope you enjoy connecting with others in the CKD community! 💚
What tests did your doctors use to lead to a CKD diagnosis?
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