This or That: Busting Myths About Living With Chronic Kidney DiseaseThere are so many myths and misconceptions about living with chronic kidney disease (CKD) and it can be hard to figure out what is factual. It's important to know the...
What Are Rare Kidney Diseases?In the United States, a kidney disease is considered rare if it affects fewer than 200,000 people. There are more than 150 different types of rare kidney diseases, and they...
Living With A Rare Kidney DiseaseMost rare kidney diseases last a long time. There is no cure, and they often do not go away on their own. This can make living with a rare kidney...
How I Handle My Doctors AppointmentsAny newly diagnosed patients who start to see a nephrologist get overwhelmed or need that extra reassurance. As someone who has been seeing doctors since 2011, I have had some...
Treating Rare Kidney DiseasesMany rare kidney diseases currently have no cure. However, there are treatment options that can help. There are several factors to consider when creating a treatment plan for a rare...
Signs and Symptoms of Rare Kidney DiseasesRare kidney diseases can affect people of all ages and backgrounds. There are more than 150 different types of these diseases, and each one has unique features. Even the same...
Coping With A New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional. It is normal to feel a range of...
How Are Rare Kidney Diseases Diagnosed?Many rare kidney diseases cause long-term damage. This damage can cause the kidneys to work less and less well over time. So, early diagnosis is key. The sooner you know...
Understanding Complement 3 Glomerulopathy (C3G)Complement 3 glomerulopathy – called C3G – is a rare, chronic kidney disease. It harms the tiny filters in your kidneys. These filters, called glomeruli, clean your blood. They take...
How is Complement 3 Glomerulopathy (C3G) Treated?If you or someone you care for has been diagnosed with complement 3 glomerulopathy, also called C3G, you likely have many questions. C3G is a very rare kidney disease. Your...