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Do you live with any other health conditions in addition to CKD?

Many people living with chronic kidney disease (CKD) also live with other health conditions. What other health conditions do you (or your loved one) live with? Were they diagnosed before or after CKD? How has it been managing multiple conditions? Please share your experiences with others!

  1. Also Neuropathy in feet and legs below knees. Lost a Kidney to cancer, stage 3b CKD in existing Kidney.

    1. O M GOSH!!! Girl I looked for you for months and months and then finally gave up. I hate that we don’t have any other way to connect and keep in touch. I’m on Facebook, Cindy Barton. Look me up.
      I’m sorry you’re still dealing with a lot of stuff. I feel so fortunate that my only gripes are leg cramps, acid reflux, and exhaustion. Although…my heart freaked out and my BP climbed to 173/87 and I took myself to the ER. Then the BP would plummet into the 80’s! It was such a roller coaster. No one is saying what’s going on but they probably know. I see my nephrologist this month. The heart doc just told me to STOP taking my BP meds and take my BP morning and night. I’m terrible at remembering. If it climbs up and keeps climb and stays there then take a pill. She said it’s the days of staying high consistently that will hurt you not just a few hours. It still feels like Russian roulette to me. I’ve been sick. Was around a lot of folks two weekends ago and sure enough last week on Tuesday I got sick. Here it is a week later and I’ve still have this crud in my head, throat, and chest. I never thought to check for Covid so I have no clue. I’m taking Mucinex and a safe syrup to try and keep the congestion loose. It’s not a fun thing.
      I’m headed to a scrapbooking event tomorrow for 5 days. Excited but it’s taxing me to get everything ready to go and the stupid weather decided it wants to be in the 30’s this week. I also have baby chicks and I have to drive them to my chicken friend an hour away tonight for her to chic sit for me. I have eggs in the incubator and I feel like I’m going crazy right now. I was so worried the power would go off but we were spared the worst of the storm.
      Well kiddo I need to continue my quest to pack up everything and load the van so I can leave tomorrow. It’s so good to hear from you and please look me up on Facebook asap so we can use messenger and talk more. Love ya girl so glad to know you are ok!!! God’s peace and comfort guide you. 🙏🏻✝️🙌🏻🛐🧔🏽‍♀️

    2. Hey there Sweet Sister, I have missed our conversations I was definitely incognito for a while I guess I let all the crap get to me I looked for you some I could not find you But I am glad I found you again I looked on Facebook for you and well I found many Cindy Barton's but I was not sure which one is you I found one that said Griffin on profile picture, is that yours? I am you are doing well ☺️ Let me if I picked the right one ! Take care al
      Walk in Peace ✌️
      Love Marge D

  2. I like that I am quadruple chronic carrier. I have T1 diabetes (49 years), RA (22 years), AS (7 years) and CKD 3a (2 years). You know what, I still enjoy great laughs.

    1. I just “liked” the churches page on fb.

    2. hi,
      I have CKD, COPD, cerebral spinal fluid leaks, sciatic nerve, IBS-c also, OCD, PTSD, major depression and extreme anxiety all being treated.
      Everything I have has been diagnosed for a good while, but CKD came at me with a vengeance. I've known I've had it for a year in 4 months now and as of February I decided I needed to accept that I have it that first year was me ignoring it and I don't know what I need to expect with it trying to get a dietitian to help me with ounces of protein grams of sodium and potassium that I could be allowed a day so I don't overdo any suggestions

  3. Yup I have diabetes. I don't which came first.

    1. I am sorry you also have diabetes. I have had T1D for 49 years on June 21 2023. I wish you the very best both with diabetes and CKD.

    2. Hello , Just wanted to see how you are getting along. How are you dealing with your diabetes and chronic kidney disease? Let us know how you are getting a long. Diane (Team Member)

  4. I also gave PN in my feet and lower legs. Fortunately not a lot of pain but my balance is off so I have to use a cane so I don't fall.

    1. Hi , thanks for chiming in with your experiences. Glad it isn't too painful for you. How long have you had PN for? Best, Minel (Team Member)

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