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What to do if you have asymptomatic symptoms in CKD?

I'm 30 years old and have been managing Chronic Kidney Disease (CKD) for the past 3 years. According to my blood test results, I'm classified as a stage 5 CKD patient. Surprisingly, I don't experience any noticeable symptoms typically associated with stage 5. My doctors have explained that I have asymptomatic symptoms. Can someone help me understand what this means?

  1. Hi How are you managing your condition so far do you have any Recommendations and asymptomatic symptoms means you don’t feel the symptoms I believe which isn’t uncommon i personal only found out because I was advised by my sisters doctor I never felt an symptoms but was actually already in the last stage of chronic kidney failure and went out dialysis. But if I may ask? what’s the next step for you as you’re at stage 5, are you currently stable?
    Thank You

    All the best

    Sabad (Team Member)

    1. Hi Sabad Khaire, Thank you for reaching out and checking on me. I apologize for being out of touch. I underwent a kidney transplant on January 3, 2024, and my doctors advised me to avoid artificial lights and using electronic devices like my phone, laptop, and tablet for three months. I'm pleased to inform you that I'm doing better now. To clarify, "asymptomatic" means not showing any signs of CKD, which is typically observed in most patients by the end stage of renal failure.

    2. Hi, Samad. There is no need to apologize. I'm so happy to hear the great news of your receiving a kidney transplant, how you are feeling & how the journey of recovery is going. That's the first I heard of that advice about the lights, and I would love to know more about how it felt for three months.

      Yes, I understand I also had "asymptomatic" systems. That's why I was also surprised about my CKD. Unlike my sister, I didn't feel anything; I had energy for days and wasn't feeling unwell.

      But I wish you an easy and well-reset cover for you,
      Thinking of you,

      Sabad (team member)

  2. Hello , Thanks for sharing this information. My youngest son also had asymptomatic symptoms. He had swelling in his legs, but that was it. By the time they found out what was going on he was stage 5. It all happened so quickly to me. The next thing I knew he was doing at-home dialysis 7 days a week. He went this route so that he could continue to work.

    How are you feeling and have you had time to decide on what treatment you are going to take? I know this is a lot. What does your healthcare team have to say about this?

    We hope to hear from you soon. Diane (Team Member)

    1. Hello , Just wanted to follow up to see how you are doing. Did you ever get answers about asymptomatic symptoms of CKD?

      We would love to hear from you. Diane (Team Member)

      1. Hi Diane Talbert Thank you for reaching out and checking on me. I'm sorry for the delay in responding. I'm also sorry to hear about your son; I hope he's doing well. My nephrologist recommended a kidney transplant as soon as possible, given my age and the fact that my old kidneys were still functioning, albeit not at full capacity. Despite not experiencing major symptoms and still being able to pass urine without dialysis, I underwent the transplant on January 3, 2024. Following the surgery, my doctors advised me to avoid artificial lights and using electronic devices such as my phone, laptop, and tablet for three months. I'm happy to report that I'm now on the road to recovery.

      2. Hello I am so happy you are doing so much better.

        You never have to apologize. We are all human. My son is doing okay. He is a fighter and I know this will not keep him down.

        How did you manage not using electronics for 3 months? That had to be tough.

        You respond back when you are up to it. "You" take care of you. We are here if you ever need to talk. We are all in this together. Diane (Team Member)

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