Stories

My name is Doylan Jackson/dj and my story starts in 2017. I was having heart issues and I had to get a heart pump put in to help my heart...

In the 1st week of July, I started feeling extremely tired, had severe leg cramps, muscle aches. I went to my PCP and drew blood. My cr was 2.5, bun...

I was born in 1963 with end stage renal disease (ESRD). I was only projected to live until I was 9. Today, I write this at 60 years old. I...

I don't know if my story is different than anybody else's. I haven't read hardly any. I just joined recently. I've avoided this part because I'm not that strong. I...

I was "diagnosed" nearly 6 years ago. My eGFR was 48 and creatine was high. Went to nephrologist and they were not concerned at all. They said the usual things...

I’ve had kidney stone surgery 3 times, lithotripsy, stents, and passed them! I’ve lived with extremely high blood for many years and taken many meds over the years to try...

After 25 years of spousal caregiver and his passing, it was time for me. I went for blood work thinking I might have Lyme, it was negative, but the doctor...

I went to my PCP at the time for a routine checkup. She ordered bloodwork, but by the time she caught my eGFR, I was already stage 3b. I was...

I was diagnosed with schizophrenia in 1965, hospitalized a total of about 10 years and for 2 weeks this year. I was given lithium and had the wrong dosage. I...

March 2022 - Blood test showed an EFR of 88 February 2023 - Blood test showed an EFR of 14 July 2023 - Blood test showed an EFR of 18...

I'm 52. I have polycystic kidney disease. Also my 30 year old daughter and 27 year old son. Both myself and my daughter have insulin dependent diabetes, anemia, and severe...

I am 59 years old and found out I am stage 4, near stage 5, I found out about 10 years ago I was stage 2, but have gotten kidney...

I was born with a pelvic kidney. I didn't learn this until I was 60. I used to get pain in my stomach. Mom said, "You have a cold in...

Early on a Saturday morning, I found myself barely able to stand up. I had no idea what was happening to me. I went to use the bathroom and I...

I don't have a medical degree, but I am a strong advocate for myself and my health. It always seems like I'm the one that brings that to my doctor's...

I mentioned to my wife's doctor that her left foot and ankle appears to be swelling, but the doctor never said anything. Although my wife had AD, and stopped eating...

I suffer from chronic kidney disease (CKD) for the past 10 years and I'm just now trying to get my kidney numbers out of good normal level. I have been...

My journey with chronic kidney disease (CKD) began in the spring of 1986 when I was diagnosed with Berger’s disease. At this time, the disease was at stage 2. There...

At the young age of 73, I'm currently living with stage 4 kidney disease. I'm not on dialysis and prayerfully I won't have to go on it. I have stopped...

I was first diagnosed with minimal change disease (MCD) and, 3 years and 3 biopsies later, they finally diagnosed me with focal segmental glomerulosclerosis (FSGS). This is a rare incurable...