I'm not doctor but...

By amyableamy

1 min read

I don't have a medical degree, but I am a strong advocate for myself and my health. It always seems like I'm the one that brings that to my doctor's attention. I have had low kidney values for years according to my lab results.

Just recently at my last check up, I asked him if he thought I had CKD. He looked back at my last several lab results and said yes, stage 2. He said to make sure I drink enough water, no caffeine, and we will just monitor the condition. I see him again in 5 months and he will recheck then.

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minel-cannucciari Community Admin
Hi <inline-mention username="amyableamy" user-id="6918555"/>, I appreciate you taking the time to share your story with us. It is SO important to be an advocate for your health. I'm glad you asked your doctor. You'd think that one's doctor would bring up these things, but so many community members have had similar experiences where their doctors don't mention anything or not until later stages. Education and awareness are key. Please keep us updated on how things go. Thinking of you, Minel (Team Member)
Diane Talbert Moderator & Contributor
Hello <inline-mention username="amyableamy" user-id="6918555"/>, I agree with you so much on this. We have to be our own best advocate. So many of us get diagnosed after we have had the illness for a while. We need to ask more questions, but sometimes don't even know something is wrong until it happens. Thanks for sharing this part of your journey with us. Diane (Team Member) 
1. amyableamy Member
 <inline-mention username="Diane Talbert" user-id="6705270"/> I have been able to reverse my CKD so that my kidneys are no longer a concern. 😀👍 It was my thyroid medications causing the problem. I am no longer on thyroid medication so my kidney function has improved. 
2. Diane Talbert Moderator & Contributor
 <inline-mention username="amyableamy" user-id="6918555"/> This is such great news. Keep up the good work. I am going to follow in your footsteps as far as reversing this. Thanks for sharing. Diane (Team Member)
Alvin Talbert Moderator & Contributor
<inline-mention username="amyableamy" user-id="6918555"/> Just following up to see how you are doing. Are you still sticking to the no caffeine and drinking lots of water? Keep in touch. Alvin (Team Member)
Diane Talbert Moderator & Contributor
Hello <inline-mention username="amyableamy" user-id="6918555"/> , We haven't heard from you in a while. How are you doing? Let us know how you are doing. Diane (Team Member)
amyableamy Member
I am trying to get back on thyroid medication. It's been a challenge finding the right one and the right dose. I think we have found the right one but not the right dose yet. I also have been diagnosed with Celiacs so I'm following a gluten free diet and I have histamine intolerance so I'm also doing a low histamine diet too. I saw an allergist/ immunologist who ran a bunch of test. I went to her with my symptoms and the test came back indicating no allergies but I have celiacs. So that's where things are. From September to December my health just about killed me. I have a friend who brought the MCAS/ histamine intolerance to my attention. Thank God she did.

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