FeaturedActive 5 days agoWhat diet works for those with CKD & Type 2…are there food lists available?Reactions 0 reactions Comments3 repliesDiet & Nutrition
FeaturedCan you share a meal that you have with CKD?Diet seems to be what the doctors focus on a lot when we have CKD. This is my first meal of the day. 2 cups of coffee, sometimes 3 with...Reactions 0 reactions Comments13 repliesDiet & Nutrition
Active todayHave you experienced any chronic kidney disease symptoms?Chronic kidney disease (CKD) symptoms can often be quite inconspicuous – that's sometimes why CKD is referred to as a "silent" disease. I'm curious to hear everyone's experiences with CKD symptoms...Reactions 0 reactions Comments75 repliesSymptoms
Active todayWhat adjustments to diet have you made since being diagnosed with CKD?Hi! Diet is often a part of management plans for chronic kidney disease. It can also be confusing because adjustments to diet are personal and can differ depending on a...Reactions 0 reactions Comments63 repliesDiet & Nutrition
Active todayWhat do you wish that someone would have told you when you were first diagnosed with CKD?I wish I had been told that I needed to watch what I eat and drink at the beginning of this journey. I wasn't told that taking care of this...Reactions 0 reactions Comments54 repliesDiagnosis
Active 2 days agoWhat do you wish others knew about life with chronic kidney disease? If a person is not directly impacted by chronic kidney disease, as a person living with it or caregiving for someone who does, it's hard to understand what it's like...Reactions 0 reactions Comments18 repliesAwareness
Active 2 days agoDo you live with any other health conditions in addition to CKD?Many people living with chronic kidney disease (CKD) also live with other health conditions. What other health conditions do you (or your loved one) live with? Were they diagnosed before...Reactions 0 reactions Comments168 replies
Active 2 days agoHow did you feel after getting diagnosed with CKD?A new diagnosis can be so overwhelming and it can bring up many emotions. Fear, frustration, surprise, and maybe even relief to get some answers. How did you feel after...Reactions 0 reactions Comments169 repliesDiagnosisCopingMental Health
Active 3 days agoPrednisone side effects Is anyone else on prednisone for there CKD? I’m on 10mg daily but there are side effects that i really struggle with such as bloating of the stomach, anxiety,tremors with...Reactions 0 reactions Comments1 repliesCoping
Active 3 days agoHas anyone ever been denied a transplant for CKD? If so, what was the reason? Were you able to fix what was causing you to be denied? We would like to hear from you. Diane (Team Member)...Reactions 0 reactions Comments1 repliesCopingAwareness
Active 3 days agoCaregivers, how do you set yourself boundaries to not overwhelm your own health? As someone with some care responsibilities as a CKD patient for my family members, for example, I tend to give too much handling help when I should delegate, but how...Reactions 0 reactions Comments1 repliesCaregiving
Active 3 days agoTwenty Four Years And Counting On DialysisI have a family member that has been on dialysis for 24 years. I remember when she first started she had to start a whole new lifestyle. She no longer...Reactions 0 reactions Comments1 repliesCopingHemodialysis