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How long to keep up the fight

I am on the evaluation journey for a kidney and pancreas transplant. My spouse will be a living donor for someone else so I can acquire a coupon to move up in the wait list.

My evaluation has been a green light up to now. I failed my cardio PET stress test!!! I have some blockage in a heart lower artery. I did not need another issue at this point.
The stress test dye can accelerate kidney decline and now I am facing an angiogram with MORE tracing dye.
I dropped from 13 GFR to 10 in the past month so I cannot afford any more GFR drops. I am not on dialysis.

I see some people simply reject dialysis and let nature run its course.
I am tired, scared and dejected at this point and considering stopping the fight. T1D for 41 years so I have just about had enough.

Have others faced a similar decision?
Once you reached the point of no return, did you regret it?

  1. First off John (if that is your name hehe) I just want you to know, as we do everyone who comes here, that you are not alone. This is a decision and emotions that so many of us face, whether its bladder cancer, blood cancer, or anything that's like that. We do have a few articles that might help:
    https://chronic-kidney-disease.net/living/journey-diagnosis

    https://chronic-kidney-disease.net/stories/lost-and-confused

    https://chronic-kidney-disease.net/living/manage-mental-health

    Above all, though, there just aren't any easy answers and even though I, myself, made it into remission I still get those days like "was it worth it?" "did I trade happy years at the end of my life for days now?" Those are things I think all of us think about from the minute we get our diagnosis. We cannot make the decisions for you but we can certainly say that you can always come here to chat, vent, be with others who get it, or just be angry at the world! It happens, and we are always here for it. If there is anything else we can do please don't hesitate. Keep on keepin' on, DPM

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