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Khiry Rowe-Hopkins

My name is Khiry Rowe- Hopkins I am 32 years old I was first diagnosed with lupus in 2009 when I was 18 years old, Both my kidneys were attacked and I have gone on to have two kidney transplants one in 2012 and another one in 2013 while having dialysis in between both of them for 10 months. Read more.

Counselling

Has anyone ever spoken to a consular about how their feeling regarding there CKD and everything that comes with it? Because I have recently reached out to someone to have...

2 replies

Coping

Other conditions

Does anyone else suffer with any other conditions aswell as there CKD? I suffer with lupus so I was wondering can anyone else relate...

1 replies

Awareness

Experiencing Anxiety Before Doctor's Appointments

Prior to 2009, I was a healthy young man who had never suffered with anxiety or worried about going to my hospital appointments. Even when I was first diagnosed with...

By Khiry Rowe-Hopkins

2 min read

1 comments

Exercising while having CKD!

I have recently started going to the gym again after years without doing any exercise and I can say it’s been so good not only for my physically but mentally...

2 replies

Awareness
Exercise

Prednisone side effects

Is anyone else on prednisone for there CKD? I’m on 10mg daily but there are side effects that i really struggle with such as bloating of the stomach, anxiety,tremors with...

3 replies

Coping

Starting back work after a long period away due to health!

I am due to be starting back part time work in the not to distant future has anyone recently gone back to work full time or part time after being...

1 replies

Awareness
Coping

Blood pressure

Does anyone suffer from high blood pressure? No matter what I do my pressure just does not seem to come down can anyone else relate?...

3 replies

Side effects of medication

I was wondering does anyone have any side effects from certain medication they are taking because recently I have noticed a few with me such as my tongue being white...

1 replies

Skin Issues I Have Faced While Living With Chronic Kidney Disease

In 2022, I had one of the worst allergic reactions I have ever experienced. It was like I had reptile skin. It was so hard and very, very uncomfortable. It...

By Khiry Rowe-Hopkins

2 min read

0 comments

Confidence being damaged since having CKD

Since I was diagnosed with CKD back In 2009 I feel my confidence has worse and worse as the years have gone on. I used to be outgoing the life...

1 replies

Coping

Glazed Chicken Wings, Roast Potatoes, Sweetcorn, and Broccoli

This is a meal for a day when you feel hungry and are prepared to spend a little more time in the kitchen. It is a well-balanced dish, and also...

By Khiry Rowe-Hopkins

1 comments

Embarrassment of meeting up with friend's when you don’t have a job?

I sometimes do not want to meet up with friends because when they talk about work I can’t be involved in the conversation because I don’t have a job, it...

3 replies

Friends & Family

Hemophagocytic Lymphohistiocytosis

In 2018, everything was going great for me. I had moved in with my partner at the end of the previous year, I had a good job, and was just...

By Khiry Rowe-Hopkins

2 min read

0 comments

Salmon Stir Fry

This recipe is great if you are looking for a simple dish that only takes about 30 minutes to make. This is great for those days I am feeling more...

By Khiry Rowe-Hopkins

0 comments

Anxiety about upcoming hospital appointments

When ever I have a hospital appointment coming up anxiety always kicks in for me I think that after having my blood tests I will receive a phone call saying...

2 replies

Coping

Curry Chickpeas, Rice, and Broccoli

This recipe is the perfect mid-week vegetarian meal for me. It is quick and very easy to make. I find it to be very delicious and very filling - both...

By Khiry Rowe-Hopkins

0 comments

Anyone else have skin issues due to CKD?

I was just wondering has anyone ever had any allergic reactions or any skin issues due to CKD? It’s something that Happens to me quite often of recent so was...

59 replies

Side Effects
Tips & Advice

My 2nd Kidney Transplant

While I was on dialysis in 2013, my grandfather called and asked if he could be tested to see he if he could be a potential match to donate his...

By Khiry Rowe-Hopkins

2 min read

2 comments

Dialysis

A few months after my first kidney transplant, I came to the realization that my body was rejecting the kidney and my kidney function was declining. This was heartbreaking not...

By Khiry Rowe-Hopkins

2 min read

1 comments

Allergic reaction

Has anyone ever had any allergic skin reactions to medication or any substances used before having a scan? I have recently had a Ct scan which has left me with...

1 replies

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