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Read conversations, start a discussion, and connect with others about chronic kidney disease.

CKD Management Study

Hello all, I am hoping to get some of your views on CKD. I am a psychologist and seeking individuals with CKD to participate in an online study investigating how...

Alport Syndrome COL4A4

I was just diagnosed with Alport Syndrome COL4A4 through genetic testing from Natera. My new nephrologist felt I should consider this since my dad died of ESRD along with heart...

What Tina Turner Taught Us About Chronic Kidney Disease?

For those of you who don't know who Tina Turner is, she was the queen of rock and roll. She just passed away recently. This is going to be short...

3rd stage kidney disease

I have mental health issues. I’m 67 years old diagnosed 2years ago with 3rd stage kidney disease that has gone from a to b....

What metaphor would you used to explain how you are feeling with CKD?

I am going to say for me it would be "a drop in the ocean". I say this because I have several chronic illnesses and I'm like, here we go...

Do you use therapy or other methods to cope with CKD?

I have been in and out of therapy with a renal psychiatrist over the years to help with learning to cope with CKD, the anxiety behind it, and learning tools...

What tips would you give to someone on how to shower with a peritoneal dialysis catheter or a chest port?

This question came up in a group meeting. Someone suggested waterproof sheets or plastic to keep the area dry. Do you have anything to add to this list? We would...

Tips for managing 3rd stage kidney disease

I have 3rd stage kidney disease how can I make it easier to manage?...

Starting back work after a long period away due to health!

I am due to be starting back part time work in the not to distant future has anyone recently gone back to work full time or part time after being...

Are You Looking For A Living Kidney Donor?

I asked this question because I'm sure most people are. There are people who don't know where to start. Of course, we start with family and friends, but what if...

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