What Medications Shouldn't I Take With Chronic Kidney Disease?
I know this is a hard question for all of us to answer without our doctor giving us directions. My primary care physician just gives me a flippant answer. I see my nephrologist and talk with a dietician next month.
I have a lot going on right now with several other chronic illnesses. I am 65 and just starting to get a little depressed. I'm glad I have a therapist now to vent to.
I feel sad that our doctors don't tell you very much about your diagnosis or just blow you off.
Has our healthcare system always been like this or is it that we are just noticing it? Let me know what you think. We would love to hear from you.
Being hit with the diagnosis of CKD is a gut punch even without other diseases and conditions. I’m sure you are way beyond angry, sad, and confused. There is nothing wrong with getting some medical help for depression or anxiety. 🙏🏻
I truly believe our doctors are so booked up they don’t have time to discuss all the things they need to in the 15 minute window they’re given. I’ve been with my nephrologist for 6 years, started at Stage 2. She never told me anything about a diet or even how much water I should drink. She never went over my labwork with me. I have found another nephrologist who I will see in December. My old doctor is probably close to or over 60 and seems set in her way of doctoring. This new doctor is young and I’m hoping will know other things and read more current research.
Hi my name is Chris and was diagnosed 2 years ago, stage 3a. Like you, the first Nephrologist only said to avoid salt. Later on I was able to see a younger doctor who was more knowledgeable. I found out about avoiding beef, all processed meat and frozen dinners and canned vegetables. Fresh vegetables and some fruits are ok. I went on Amazon and found some excellent and accurate books on kidney disease and what to eat and what to avoid. Also found some great books with kidney healthy recipes. Writing down questions for the next appointment is very helpful.
Hello
, You are so right, our doctors rush in and out. I see my nephrologist in December also. I have a list of questions for him.
My father will be 90 in March. He had a very old doctor. I know he was close to 80, but he would talk to my father for a couple of hours at every appointment. He's gone now, but my father always talks about how much he misses him and how he took his time with him. I told him those days were gone. He always says this is why he has lived so long because the doctor took care of him. He has had CKD for over 10 years and he is still going strong.
Thanks for sharing some of your journey and keep on being your own best advocate. Let us know how your appointment goes.That’s amazing that your dad was able to have such a caring and loving doctor…one who wasn’t money focused. Bless his heart going strong for ten years now. That’s awesome. So do you think your CKD is hereditary? My dad passed of ESRD and heart complications. I wonder if it is for me. I’ve had some kidney issues my whole life. I spilled blood (microscopic) since I was little. I had so many tests done and never a solution. My
Mom told me at one point they thought I would die of a rare kidney disease. Now I wonder if I have IGA. The symptoms are blood in urine and also protein spill which I have both. 🤷🏼♀️Hello
, That is an excellent question - is it hereditary? I try not to think about that. My youngest son does dialysis 7 days a week. He's doing okay, but as a mom, I asked why. I got diabetes at a very young age. My mom died of that at age 37 when I was 19. I always thought that would be my demise. We have so much to deal with in life. You keep moving forward.
