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How has CKD impacted your mental health?

Mental health is important to everyone, but can be especially important when living with a chronic health condition, like chronic kidney disease (CKD). There can be many different emotions and feelings that come up at different points of the journey when living with CKD. If you feel comfortable sharing, I'd love to hear more about the emotional effects of CKD πŸ’š Also, what has helped you cope with the emotional impact?

  1. What mental health issues should I be aware of and better treat myself so I can prevent these?

    1. Hi , In my experience, I struggled with anxiety and depression more anxiety because I felt the worse my condition got, the more I was worried about the risk that it would have on me, the symptoms I would be getting and more so with the surgery and medication, how they would change me and affect my everyday life, When I was younger it was harder for me dealing with my emotions.


      But still, now, I believe in seeing a renal therapist or having a therapist I can talk to, having a support system that helps and raises me on my bad days and enjoys the good days with me, and talking to people who understand my condition and what I am going through helps me a lot. I tried different types of therapy as I couldn't take medication for my anxiety and depression. I always try to walk in my capabilities to get fresh air and a different view. I hope this helps you in some way.


      Thanks Sabad (Team Member)

      1. The fatigue is so overwhelming, my energy is at zero. I can't get off the couch. I don't know how to deal with this.

        1. , fatigue with CKD can be so overwhelming. I think a lot of others in the community can relate to what you've shared. You've probably tried a lot of these ideas already, but just wanted to pass along this resource to you in case there was something that you haven't looked into before: https://chronic-kidney-disease.net/fatigue. Thinking of you, Minel (Team member)

      2. Both of my children and myself have CKD. They are adults and were diagnosed early ages 5 and 8. Because polycystic kidney disease is hereditary all 3of my daughters kids will be tested as well. This takes a huge toll on all of our mental health.

        1. , my heart goes out to you and your family. I can see how the genetic component of PKD can take a big toll on your family. I'm glad that your daughter's kids will also be tested. Please know that the community is here for you if you ever need a place to vent or are looking for support πŸ’™ Thinking of you, Minel (Team member)

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