What is your current management plan for CKD?
Everyone's management plan for chronic kidney disease may look different. There may be a combination of medication, dialysis, transplant, diet, exercise, and more. How are you currently managing your CKD? Please chime in and share!
I have had a kidney transplant for three years and just celebrated it on the 3rd of this month! I’m on a lot of different medications for it from anti-rejection drugs to steroids, two different blood pressure, and more. It’s a blessing being able to have a health transplant, of course, there’s food I have to avoid because of the medication but it’s not a big issue as it’s something I can live without like Shushi it’s all worth it in the end lol.
Thank you, Sabad (Team Member)
Plan?? What plan???? I get labs done twice a year and go to the specialist twice a year to hear my results of my labs. I would think there would be more involved with such a serious condition. No advice or direction on what to avoid or not avoid. No direction on what to eat or not to eat. I am lost.
Same here. My kidneys hurt but I’m also being treated for crushed vetebrae and disks. All that is being done is the blood tests, urines, and go to my specialist once a year. 
oh I know you must be in pain with all that going on in your back. I have herniated discs and scoliosis so I too have known back pain.
Can I ask what stage kidney disease you are at? I’m stage 3b and see my nephrologist every 3 months for labs/urine and results. She spends a good 20-30 mins with me going over everything and listening to me. I can ask questions and she takes the time to answer. I record all my meetings with her so I can listen later on. So much to remember. I hope your specialist can see you more frequently even if you are stage 2. There are things you can do now to slow the progression. One is a plant based diet and the other of course is drinking your water allotment which is usually 1/2 your body weight in ounces of water but make sure to ask you doctor for a number. The water helps to flush out the toxins and also our kidneys and heart need hydration always. Keep fighting the good fight kidney warrior 💚
Cindy (Team Member)
I am not impressed with having stage 5 and need hemodialysis. I have had a fistula that never worked and had a graft that is not much better I have had 7 sessions of hemodialysis with 4 success and 3 infiltrated 1 trip to access clinic to have graft unclogged. It is not looking too positive I am being trained to do home hemodialysis 5x a week but I don't see an up side I Pray it will get better. Thanks for allowing me to vent I have had 4 knee revisions with multiple bouts of MRSA and finally finished that but my kidneys paid the price of vancomycin I worry about having brittle bones and long stems in both knees .Thanks Hudson Carlton
Good Morning Hudson. Wow so much. I’m so glad you have a wonderful bride by your side to encourage and be with you. Keep fighting. Cindy (TM) 
Hey Herb, Thanks for sharing your support. You also are going through a lot! It's nice that you have your wife by your side as you endure the dialysis. Take care of yourself and know that we are here for support should you need it. Sending healing thoughts. - Kat (Team Member)
I monitor my protein, phosphorus, potassium and sodium intake as well as water intake. Hope it's working!
That is quite a lot to monitor! I try to monitor my food intake on my own chronic illness journey so I use an app on my phone that basically reads the barcode of the foods and then breaks down all the ingredients and calories for me. It is pretty useful, I won't lie and now I'm in the habit of using it everyday. It might be worth checking out an app like that! If you need help let us know. Keep on keepin' on, DPM
