What is your current management plan for CKD?
Everyone's management plan for chronic kidney disease may look different. There may be a combination of medication, dialysis, transplant, diet, exercise, and more. How are you currently managing your CKD? Please chime in and share!
I have had a kidney transplant for three years and just celebrated it on the 3rd of this month! I’m on a lot of different medications for it from anti-rejection drugs to steroids, two different blood pressure, and more. It’s a blessing being able to have a health transplant, of course, there’s food I have to avoid because of the medication but it’s not a big issue as it’s something I can live without like Shushi it’s all worth it in the end lol.
Thank you, Sabad (Team Member)
Plan?? What plan???? I get labs done twice a year and go to the specialist twice a year to hear my results of my labs. I would think there would be more involved with such a serious condition. No advice or direction on what to avoid or not avoid. No direction on what to eat or not to eat. I am lost.
would you consider getting another opinion? Many of our members suggest getting two or more opinions from the doctor until they are comfortable with the treatment plan. You deserve to have the best care from your medical team. In the meantime, I am sending you an article about good food choices: https://chronic-kidney-disease.net/diet and some tips for a healthy lifestyle: https://chronic-kidney-disease.net/lifestyle-changes. I hope this is helpful for you. Jill (Team Member)
I am not impressed with having stage 5 and need hemodialysis. I have had a fistula that never worked and had a graft that is not much better I have had 7 sessions of hemodialysis with 4 success and 3 infiltrated 1 trip to access clinic to have graft unclogged. It is not looking too positive I am being trained to do home hemodialysis 5x a week but I don't see an up side I Pray it will get better. Thanks for allowing me to vent I have had 4 knee revisions with multiple bouts of MRSA and finally finished that but my kidneys paid the price of vancomycin I worry about having brittle bones and long stems in both knees .Thanks Hudson Carlton
prayers to you. You are welcome to vent here any time! You have been through a lot, sending you strength. Jill (Team Member) 
oh goodness Hudson I just can’t imagine all you’ve gone through. You are a warrior for sure. Coming out of MRSA multiple times is amazing. That’s such a hard infection to kick. I’m so sorry you have experienced such trauma with your fistula and the drugs you had to take. If the dialysis clinic can’t successfully do your hemodialysis in clinic how do they think you will be able to successfully do them 5 times a week at home with no medical help? Is there another way like a chest port or is that just too scary? I wish I could take stuff like this away from people so they wouldn’t have to endure this. My prayers for peace and comfort and thoughts are with you Hudson. Please keep venting all you like on here we are here to listen and hopefully support you in long distance encouragement. Keep fighting the good fight. 💚 Cindy (Team Member)
