What is your current management plan for CKD?
Everyone's management plan for chronic kidney disease may look different. There may be a combination of medication, dialysis, transplant, diet, exercise, and more. How are you currently managing your CKD? Please chime in and share!
I have had a kidney transplant for three years and just celebrated it on the 3rd of this month! I’m on a lot of different medications for it from anti-rejection drugs to steroids, two different blood pressure, and more. It’s a blessing being able to have a health transplant, of course, there’s food I have to avoid because of the medication but it’s not a big issue as it’s something I can live without like Shushi it’s all worth it in the end lol.
Thank you, Sabad (Team Member)
This is my complaint as well. In fact, they never even suggested I see a specialist, or tell me what to eat or not eat. Nothing! I'm Stage 3! While we can't do much about doctors being their usual nincompoop selves, ha ha, we can at least point you to an article about some of our community members diets with CKD! https://chronic-kidney-disease.net/living/role-diet-nutrition Hopefully it will give you a place to start - let us know if there's anything else we can do! Keep on keepin' on, DPM
Plan?? What plan???? I get labs done twice a year and go to the specialist twice a year to hear my results of my labs. I would think there would be more involved with such a serious condition. No advice or direction on what to avoid or not avoid. No direction on what to eat or not to eat. I am lost.
Same here! No advice, no answers. I've had to do my own research. I see a nurse practiser (different one each time). I get to talk with a Sommatus nurse via phone and this helps a bit. Sometimes you just have to look for help outside your Doctor's office. Hope you can get some answers! Exactly the same for me! I also have prostate cancer and MDS. I stopped the ADT hoping to lessen my fatigue. It has helped a bit, but know I'm sure now that my CKD is causing a lot of it.
I am not impressed with having stage 5 and need hemodialysis. I have had a fistula that never worked and had a graft that is not much better I have had 7 sessions of hemodialysis with 4 success and 3 infiltrated 1 trip to access clinic to have graft unclogged. It is not looking too positive I am being trained to do home hemodialysis 5x a week but I don't see an up side I Pray it will get better. Thanks for allowing me to vent I have had 4 knee revisions with multiple bouts of MRSA and finally finished that but my kidneys paid the price of vancomycin I worry about having brittle bones and long stems in both knees .Thanks Hudson Carlton
Hey Herb, Thanks for sharing your support. You also are going through a lot! It's nice that you have your wife by your side as you endure the dialysis. Take care of yourself and know that we are here for support should you need it. Sending healing thoughts. - Kat (Team Member) Sorry to read you are having such a hard time. I am curious as to your age. I had previously posted a report about a study done at a US verterans hospital which showed that for on average for men over 65 those who had dialysis lived just 9 days longer than those who did not. I am at stage 4 and at age 86 have decided that I will not go for dialysis. The whole process seems to me to be bloody awful not to mention the tedium of all the messing around with either dialysis three times a week or hemodialysis.
I monitor my protein, phosphorus, potassium and sodium intake as well as water intake. Hope it's working!
That is quite a lot to monitor! I try to monitor my food intake on my own chronic illness journey so I use an app on my phone that basically reads the barcode of the foods and then breaks down all the ingredients and calories for me. It is pretty useful, I won't lie and now I'm in the habit of using it everyday. It might be worth checking out an app like that! If you need help let us know. Keep on keepin' on, DPM
