Have you ever experienced burnout with CKD management?
There can be a great mental and physical toll from managing life with chronic kidney disease. Do you ever experience burnout?
If so, what do you do when you are feeling burned out? Are there any particular burnout signs you look out for? Do you have any go-to mantras, distractions, or hobbies when you need to recharge? Please share your experiences with us 💚
I like to si g when I feel bad about my ckd and I have heart disease and a condition tied to my pancreas that causes pancreatitus every day. I make sure I take my pain meds before it gets to bad. It's much harder to get it back in check than to fix it when it is so bad. I give myself permission to use my breakthrough pain meds and not suffer for long times. I have dilaudid for break through and I sometimes worry it will make things worse. Sing, drink water, pray....
Hi Shelley, thank you for sharing. I love that you're able to turn to singing when you need a pick-me-up. Music and singing can be so powerful. Do you have any go-to songs or musical acts you usually sing from? Giving yourself permission can be hard, but it's also not worth it to suffer. Thinking of you, Minel (Team Member)
I like to walk or bicycle. The best part is getting coffee with Sheryl after walking. I like the Sheryl part best. J
Stage 3 in 2015, I had no idea that I had CKD. I am now Stage 4 severe. Any day now I will get my fistula. I am 70 years young. I am 5 ft 2" and weigh 100#s. In 2015 weight was 175#s. The last 10#s haven't been by choice. I read as much as possible about our disease and managed to keep the numbers at bay by diet and lots and lots of water. My once-healthy husband became ill over the last 6 months and had PE, sepsis, pneumonia, and fluid in his lungs. 3 hospitalizations. I am not complaining, we are 50 years in love, imagine that! But, that's where burnout happens, you don't care about diet, water, exercise, etc. Has something like this happened to anyone else?
Hi
, thank you for being willing to share some of your experiences with us. Being a care partner to someone is a lot of work. Coupled with taking care of your own health as well as other regular, everyday pressures, it's a lot for anyone to handle.
I hope people can chime in to share their experiences. I have to believe that you are definitely not alone in your feelings. Please know that the community is here for you whenever you need to vent or are looking for support. Life with CKD is tough. Thinking of you, Minel (Team Member)
Burn out is definitely real in fact I can say I was experiencing the same a week ago. Life can get so busy and overwhelming that our goals and necessities to maintain our health and lifestyle falls at bay. To break out of this I write out my goals and necessities as a reminder of what is important to me for me. When it is written and posted somewhere you cannot hide from, its a constant reminder of the things you need to do. I also set alarms and events in my phone. Do you think its a time management concern or energy (both physically and mentally). None of this is easy. With you needing to take care of yourself and support your husband through his own health journey a good mantra would be "I can do hard things". This is something I say to myself every day when a challenge approaches. I get through those challenges every time. I hope your burn out season is a short one.
Danyea Bailey
Team Member
