How I felt after CKD diagnosis:
Felt scared, overwhelmed, and sad.
I’m still quite worried about if the future will require dialysis
Hi, I wish you luck. The thought of dialysis can be scary. I know - I am going thru the same thing. T1 diabetic for 52 years, battling kidney disease for almost 20. Received transplant 2/28/25, and they messed something up. 3 weeks in the hospital - not all at one time. Six ureter to bladder connection stretching procedures to relieve the restriction at the connection, kidney tubule damage, and on and on. I received a Cadillac kidney from my younger sister, and Tufts somehow managed to screw it up. Nine months post- transplant, and my egfr is a whopping 36, instead of the typical 60. Now back in stage 3b ckd. Dr estimates kidney will last 7-10 years, by which time I will probably be dead anyway. But I dont think there is any chance it lasting that long, based upon the rate I declined the first time. I estimate 4-5 years before total failure. Once I hit stage 4 the first time, I wasn’t living - I was existing - a shell of a man. Severe wasting - from a 190 lb body builder to 160 lbs. after transplant, dropped to 130 lbs because I was so sick. Not sure what I will do when my new kidney fails. I may refuse dialysis and just call it a day. Best of luck to you - I hope you can hold off failure for a long time, but stress and anxiety is all part of it.
Thank u so much for taking the time to share your kidn words and experience. It can be scary but it definitely does give comfort for people to hear from other commuity memebers who may have been through something silmilar also. What's the saying? Misery loves company? Well, not misery this time but you get the idea! Remember that you, too, are not alone! Keep on keepin' on, DPM
