caret icon Back to all discussions

Do you have support when things get tough with CKD?

I was just diagnosed with chronic kidney disease, but I have several other chronic illnesses. My anxiety was through the roof, I was scared, and then the tears came when I heard this news.

Who has your back when things get bad for you? Do you like sitting and talking with lots of people or just one on one?

  1. When I found out I was one point away from Stage 4 CKD I panicked and was consumed 24/7 with my condition. It took my breath away. I grabbed my iPad and started researching what I could do to slow it down. I felt like no one could understand what I was going through, like my children. They’re sympathetic and loving but they don’t get it. I understand that. I am alone after being with my ex for 32yrs so I have no help. I’m okay right now at a 3a but as this disease progresses I don’t know what I’ll do.
    My strength comes from my belief in God. I am involved in Bible Study and a couple of woman’s growth groups plus a luncheon group. These help me network with other folks who will pray for me and maybe even be there for me when I need the most help.

    I hope you can find some local support who will lift you up and also help you out. I’m sorry you’re going through so much. The weight of all of this can be tough.

    1. good morning. Another group is Vital Kidney Nutrition on Facebook, Lindsay is a certified renal dietitian. You will also find them on Instagram!

    2. Hello , I just joined, just waiting for approval. Thanks for the information. We are all in this together.

  2. Hello , Thank you for the kind words. I have a lot of support here at It's people like you that make me feel that I am not alone. I advocate very strongly for myself and others. Thank you for sharing so much with us and I am also a believer. Let us know how you are doing.

    1. Well I do get support from this forum. This is just another thing I have that people can't see and have no clue what is going on.

      1. Hello , This is so good to hear. We all need someone to just listen sometimes. Thanks for sharing. Just remember, that we are always here.

      2. Hello , I just wanted to check in and see how you are doing. I understand what you mean about no one can see or know we have this illness. I have shared with family and friends what is going on. It's hard, I get it. I don't want anybody feeling sorry for me and treating me differently. I just want to share my journey with them.

        How are you feeling We would love to hear from you. Diane (Team Member)

    Please read our rules before posting.