Tell us about your symptom and treatment experience. Take our survey here.

caret icon Back to all discussions

Caregiver

I am my husbands caregiver. I run his home hemodialysis through his fistula. We are a very strong couple, but sometimes I get overwhelmed. I work, take care of everything in the house as well as him. I have asked him to be more helpful - however he is so tired all the time. I think it would be better for him to be more active. He isn't when I am at work, and when I am home we are doing dialysis for 5 hours before the evening and my goal of getting some good rest and sleep. I love him, he is my best friend. I just get frustrated at his lack of helping around the home. Maybe I am asking more of him than what is a reality with end stage kidney disease. We are praying that he will receive a kidney transplant. That alone is a huge journey. I participate in all his appointments and care. I want the very best for him, so home hemo is what we were told was best for his health. He is in good health outside of the kidney disease. I am of good health, however I have put on weight over the last year and half plus that he has been on dialysis, and that gets to me as well. I feel stress and am not sure what to do. Is there someone in this community that is support for the caregiver/spouse of the patient that can give some words of wisdom and encouragement. We do dialysis 5 days a week.

  1. I can hear how hard this is for you. You love your husband and want to be there for him, and at the same time, you're seeing that it's affecting your quality of life as well. It can be so challenging to find a balance as a caretaker. Please know that you're not alone. There are lots of resources for you to find support. I'm going to attach an article here that has a list of some of those resources. Please continue to reach out to this community as well, as many of our members are caretakers going though similar experiences to you. I hope this helps! Take good care of yourself.

    https://irritablebowelsyndrome.net/living/ibs-c-more-than-constipation


    Warmly,
    Kat (Team Member)

    Please read our rules before posting.