Access To Medical Records

I was once a inpatient for having infections in my kidney and my folder was just sitting there and I had a read of it and to stay I was shocked, what I read was awful instead of make a medical hypothesis they choice to look at my race and make a diagnosis which was totally wrong it’s something that anyone would be really angry about but I was sitting there in the hospital bed thinking I have to take control of my own health now that I’m this far with my ckd health problems and that started with a doctor I can trust and respect which I’m very lucky to have today even though it took over 13 years, building a relationship with your health care professionals is a key step in maintaining a stress free journey and the medical records is always important to have access to.






Thanks Sabad (Team Member)

Hello , Thanks so much for replying. If I don't understand many things in life I understand what you are saying. I got my first chronic illness in 1963. I was 5. I didn't realize that people looked at me any differently until my mid-teens. I was told so many times where my place was in society. I was in my mid-30s when I realized this was not right and met my husband. We advocated together and were able to look at some of my medical records. It was at that point that everyone said my pain was in my head, but the crazy part was that I had a severe case of psoriasis that covered over 80% of my body and I never got better.


I finally figured out that I had to take care of myself. I started looking for a doctor who looked past the color of my skin. I did find one. He has been around for 25 years now. But back to my question, I have been able to get access to some of my medical records, and still not happy about some of the comments. Thanks for sharing some of your journey. We are all in this together. Diane (Team Member)