Tell us about your symptom and treatment experience. Take our survey here.

Marge D's avatar image

Marge D

Primary Badge Member
Profile

Marge D's Status Updates

"I was just recently diagnosed and I'm already at stage 3b,I was scared, worried and a bit annoyed and angry that my pervious doctor didn't find it out "

  1. Hi , it can be very overwhelming to get a new CKD diagnosis. Especially when a doctor could have told you sooner - that is extremely frustrating, but unfortunately not uncommon for people with CKD. It sounds like you may have switched doctors, is your new doctor more helpful? I also wanted to pass along this article about being newly diagnosed if it might be helpful: https://chronic-kidney-disease.net/living/coping-new-diagnosis. Thinking of you, Minel (Team Member)

  2. hey Girl. Just checking in. How are you?
    I’ve got some new issues…my heart has been fluttering and jumping a bit. I had an ekg done and my T Waves aren’t what they should be. I’m scheduled for a nuclear stress test but their first appt is a month away!!! I feel like I’m a ticking bomb with my heart. I wore a heart monitor for three days but it’s not live so the results will take up to 2 weeks to get back. So no test or my heart is urgent yet I feel like the fact that abnormal t waves could mean a blockage is significant and should be handled more urgently you think??? I’m just really frustrated at this point. I’ve been eating healthy and going to exercise classes I guess it’s not enough for what’s happening inside my heart. Heart surgery such as bypass could be Brutal for me. I had a robotic bypass surgery when I was 55 and it took a toll on me taking a year to recover from that and I had my husband at the time to help me. I just need to give this fear and worry to the Lord. He will sustain me.
    Hope you are feeling better. Please stay strong kidney warrior đź’š Cindy

  3. Hey there Darlin I am sorry that you are going through this, I am saying prayers for you Hope everything turns out good, please let me know Just seems when it rains it poors I'm feeling like crap still, no Kerendia yet, guess the insurance company knows better than my doctor I really wish we were closer to each other, I would love to help you with things I could or at least keep you company, not that I'm the best company but we certainly could have coffee and a chat I'm trying to put things in the Creator's hands, but sometimes I just get down I promise to keep fighting the good fight and I want to you too Fight on Kidney Warrior and talk soon Walk in Peace
    MargeD

  4. Cindy Barton Hey there Darlin I'm just checking on you I hope you are OK I am sending prayers and healing vibes Keep fighting 💜 And Walk in Peace ✌️
    MargeD

  5. Hi there Friend 🧡 I am sending you prayers and healing vibes and Hugs Hope you are doing OK Your Friend 🧡
    Marge D